[Nmefman] ANNOUNCEMENT - UNHEARD VOICES: MY STORY
July 12, 2010
Dear Friend:
Re: Unheard Voices My Story
Are you living or have you recovered from ME/CFS
or FMS? How many times have you become
overwhelmed with emotions you keep up inside that
come from not being believed or were not being
believed? You are burdened with wanting to talk
and yet not wishing to sound that you are
complaining or feeling sorry for yourself. There
is healing in talking and you have a right to be
heard. I would like to give you that opportunity.
This project has been on my mind for some time
but the right opportunity never seems to present
itself. However, I think that moment has now
arrived. I have tentatively titled it Unheard Voices My Story.
I would like to tell your story along with
others, not only to help you but also to help
those who are in a similar situation so that they
would know that they too can survive and go
on. They can learn from your experiences and
solutions as you can learn from theirs.
You can choose to identify yourself, stay
anonymous or take on an alias in the story. I
would like to disclose at least the country where
youre from as I am making this a world-wide
project. We are united in coping with an illness
as illness has no conscious or bias By sharing
your story, someone who has become discouraged may find the courage to go on.
If you would like to participate, please contact
me and put my story in the heading. Your contact
will be treated as confidential and will not be
disclosed. Please use just plain word format in
your story and keep in mind that it needs to be
relevant to the topic. There is no age limit.
There is no timeline on this project as of yet
but if done in time I am hoping that it can be
used for a fundraiser towards the cost of the
2011 IACFS/ME research and clinical conference we
are hosting in September 2011 here in Ottawa.
Lydia
Lydia E. Neilson, M.S.M., Founder
Chief Executive Officer
National ME/FM Action Network
512 - 33 Banner Road
Nepean, ON K2H 8V7 Canada
Tel. (613) 829-6667 Fax (613) 829-8518
E-mail: ag922(a)ncf.ca
Web: http://www.mefmaction.net