Dear Friends: As there are many who are enquiring about the National ME/FM Action Network and more so as we have a new website and the host of the research and clinical conference in Ottawa in September, I thought I would simplify matters and just let you know in a nutshell about our organization. Lydia Lydia E. Neilson, M.S.M. , Founder Chief Executive Officer NATIONAL ME/FM ACTION NETWORK 512 - 33 Banner Road Nepean, ON K2H 8V7 Canada Tel. 613.829.6667 Fax 613.829.8518 Email: mefmaction(a)ncf.ca www.mefmaction.com NATIONAL ME/FM ACTION NETWORK 1. A registered Canadian all-volunteer charity established in 1993 with a world-wide outreach and proven track record; 2. ACTION-oriented; 3. Spearheaded the Working Case Clinical Definitions, Diagnostic & treatment Protocols for ME/CFS and FM – Consensus Documents, known world-wide as the Canadian Definitions; 4. Responsible for the publishing of the definitions which led to the establishment and publishing of the ME/CFS and FM Overviews; 5. An active website with a presence on Facebook, Twitter and www.ME-CFSCommunitiy.com; 6. Hosts conferences and host of the 10th international IACFS/ME clinical and research conference for ME/CFS, FM and related illnesses in Ottawa on September 22nd to 25th, 2011. 7. Publishes a quarterly newsletter QUEST on medical, research and legal matters and now includes a section entitled The Journey dealing with issues on treatment, support and empowerment to the ME/CFS and FM communities, 8. Sends out regular email announcements of interest to contacts on its roster; and keeps in touch with and collaborates with support Networks in Canada, the U.S. and the rest of the world; 9. Developed resource items, such as a Canada Pension Plan Disability Guide, TEACH-ME Sourcebook for Teachers and Parents, Legal Disability Manual etc. 10. Intervenes in precedent-setting court cases; and supports scientific endeavours. Our annual membership of $30.00 is open to everyone world-wide and includes our quarterly newsletter QUEST . NATIONAL ME/FM ACTION NETWORK - HOST OF THE IACFS/ME INTERNATIONAL RESEARCH & CLINICAL CONFERENCE - OTTAWA, CANADA SEPTEMBER 22 - 25, 2011 Visit: www.iacfsme.org