June 08, 2011 05:00 PM Eastern Daylight Time
Chronic Fatigue Syndrome to Get Web Television Presence
WASHINGTON--(BUSINESS WIRE)--A new Web-based television program aims to shine a light on
Chronic Fatigue Syndrome, sometimes referred to by patients as “the living death” disease.
The disease also is known by its old name – and the one favored by many patients – myalgic
encephalomyelitis.
“In more than 50 years of reporting, I've never experienced so many people so
misunderstood and abandoned by society and many doctors. I've worked on three
continents and reported from around the world, but never have I had a response like the
one I've had from writing about M.E./CFS”
The program is called “M.E./CFS Alert” and can be accessed on the You Tube Channel
LIMFIL88. The program will soon be accessible at
www.whchronicle.com, the Web site of the
weekly news and public affairs television program “White House Chronicle.”
The program was conceived by Llewellyn King, a Washington columnist and executive producer
and host of “White House Chronicle” and Deborah Waroff, a New York writer and security
analyst, who has suffered from the disease for 22 years.
“This is a terrible, debilitating and essentially lifelong disease which, like AIDS,
suppresses the immune system. Our program has three objectives: to comfort the suffering;
to change attitudes among physicians and medical institutions, and to implore the
government to provide critically needed research funds,” Waroff said.
An estimated 1 million Americans are so severely impacted by the disease that for months
and years they are house-bound. Worldwide some 17 million have lost the ability to lead
normal lives and work.
Often those who have suffered total physical collapse are ostracized because of bigotry
and ignorance. Institutions, like Britain's National Health Service, treat M.E./CFS as
a psychiatric disease, even though patients are in great physical pain.
The disease knows no economic, geographic or social boundaries. Author Laura Hillenbrand
is the best-known American victim.
“In more than 50 years of reporting, I've never experienced so many people so
misunderstood and abandoned by society and many doctors. I've worked on three
continents and reported from around the world, but never have I had a response like the
one I've had from writing about M.E./CFS,” King said.
The first program is an interview with pioneering M.E./CFS doctor Derek Enlander.
Contacts
White House Media LLC
Llewellyn King, 202-662-9731
lking(a)kingpublishing.com
Lydia
Lydia E. Neilson, M.S.M. , Founder
Chief Executive Officer
NATIONAL ME/FM ACTION NETWORK
512 - 33 Banner Road
Nepean, ON K2H 8V7 Canada
Tel. 613.829.6667
Fax 613.829.8518
Email: mefmaction(a)ncf.ca
www.mefmaction.com
NATIONAL ME/FM ACTION NETWORK - HOST OF THE IACFS/ME INTERNATIONAL RESEARCH & CLINICAL
CONFERENCE - OTTAWA, CANADA
SEPTEMBER 22 - 25, 2011
For details on agendas and registration, please visit:
Member of
www.iacfsme.org