ANNOUNCEMENT: HIGHLIGHTS OF QUEST NO. 88
by Lydia Neilson
QUEST
Quarterly newsletter
Summer 2011 – No. 88
HIGHLIGHTS
SPECIAL ISSUE
STATISTICS 2010
An in-depth look at the figures & findings of the 2010 Canadian Community Health Survey;
ALSO:
Issue No. 3
Summer 2011
The Journey
HIGHLIGHTS
· Vagus Nerve Stimulation shows promise for treatment-resistant fibromyalgia;
· Independent Medical Examinations (IMEs) and You;
· New research points to benefits of multidisciplinary treatment;
· Ten observations about recovery from CFS;
· Website Profiles;
· Support Group News & Updates
· Bee stings to reduce fibromyalgia pain?
PUBLISHING DATE: WEEK OF OCTOBER 2, 2011
, with the added section of The Journey, is the quarterly newsletter of the National ME/FM Action Network and free with a membership of $30.00 per year,
Lydia
Lydia E. Neilson, M.S.M. , Founder
Chief Executive Officer
NATIONAL ME/FM ACTION NETWORK
512 - 33 Banner Road
Nepean, ON K2H 8V7 Canada
Tel. 613.829.6667
Fax 613.829.8518
Email: mefmaction(a)ncf.ca
www.mefmaction.com
NATIONAL ME/FM ACTION NETWORK - HOST OF THE IACFS/ME INTERNATIONAL RESEARCH & CLINICAL CONFERENCE - OTTAWA, CANADA
SEPTEMBER 22 - 25, 2011
For details on agendas and registration, please visit:
Member of www.iacfsme.org
12 years, 7 months
ANNOUNCEMENT: OTTAWA 2011 UPDATE
by Lydia Neilson
Dear Friends:
First of all, I will be occupied with the conference from September 20th to 26th, 2011 so please keep your emails to a minimum as I don't know how much I will be able to check them. Thanks.
There will be quite a few giveaways so one of our Network's legal advisor, Mr. Hugh Scher of Scher Law Professional Corporation - Toronto, has been kind enough to provide us with a complimentary DVD entitled Solving LTD and CPP Disputes. Mr. Scher is well known in the legal community for his expertise on disability law and also see ME/CFS and FM clients on a regular basis due to his expertise in that area also as well as other disabilities and conditions. He will be a speaker at the Patient Conference;
Lawyer, Mr. Ted Masters, of the firm of Burke Robertson et al in Ottawa, who is also well known in the ME/CFS and FM community will be at our table at the conference and can be seen for legal advice. His firm is providing complimentary tote bags and has provided us at their expense with our new banner which will be displayed at the conference;
Dr. Alison Bested has designed a tool kit for patients which will be available at a nominal cost at the conference and the profits will go to the National ME/FM Action Network. Dr. Bested is well known in Canada for his medical expertise in the field of ME/CFS and FM and was one of the panel members of the Canadian ME Definition, Consensus Document, in 2003. Dr. Bested does not only diagnose and treat people with ME/CFS and FM but was involved at government levels which led to a billing code for ME/CFS in Ontario for doctors seeing ME/CFS patients. She advocates tirelessly for those who least are able to fend for themselves and is a regular speaker at events to spread awareness and hope. We are deeply grateful to have such a gem in our midst.
Dr. Byron Hyde of the Nightingale Research Foundation will be kindly providing us with copies of The Clinical and Scientific Basis of Myalgic Encephalomyelitis Chronic Fatigue Syndrome which was published in 1992 but its medical and scientific information contained therein is still accurate and applicable today. He is providing this book free of charge but suggests a donation be made to the National ME/FM Action Network. We are grateful to Dr. Hyde not only for providing us with this valuable book for distribution but also for his difficult journey over the years in bringing awareness and knowledge to the population on ME/CFS and acknowledgement of the illness led to ridicule.
Ottawa Tourism has also provided our Network with a guide to Ottawa which will also be available at our table.
There will be lots of other goodies so the tote bag will come in handy.
Ottawa Tourism has also provided our Network with a guide to Ottawa which will also be available at our table.
There will be lots of other goodies so the tote bag will come in handy.
For those who are travelling, I wish you a safe journey and will see you in Ottawa. Those who are not well enough to do so, please stay turned to our website at www.mefmaction.com for updates or Facebook.
I hope everyone's stamina holds out. The National ME/FM Action Network team looks forward to meeting you.
Lydia
Lydia E. Neilson, M.S.M. , Founder
Chief Executive Officer
NATIONAL ME/FM ACTION NETWORK
512 - 33 Banner Road
Nepean, ON K2H 8V7 Canada
Tel. 613.829.6667
Fax 613.829.8518
Email: mefmaction(a)ncf.ca
www.mefmaction.com
NATIONAL ME/FM ACTION NETWORK - HOST OF THE IACFS/ME INTERNATIONAL RESEARCH & CLINICAL CONFERENCE - OTTAWA, CANADA
SEPTEMBER 22 - 25, 2011
For details on agendas and registration, please visit:
Member of www.iacfsme.org
12 years, 7 months
ANNOUNCEMENT: OTTAWA 2011 IACFS/ME APPEAL
by Lydia Neilson
TO THE ME/CFS, FM AND RELATED ILLNESSES COMMUNITY
I would like to warmly thank Lydia Neilson for this important opportunity to appeal to you on behalf of the International Association for Chronic Fatigue Syndrome/ME (IACFS/ME; a non-profit organization; www.iacfsme.org). Our upcoming research and clinical conference (Sept. 22-25, 2011) — the only international professional and patient conference dedicated to CFS/ME and FM -- will be held in Ottawa, Ontario, Canada (www.iacfsme.org). We hope to see you there.
Our organization, founded in 1994, strongly advocates for biomedical research and improved patient care for people with CFS/ME and FM. In the past two years, we have increased our service to the community by publishing a quarterly scientific journal (Bulletin of the IACFS/ME) and the IACFS/ME Newsletter which reports on current issues on CFS/ME.
We have also posted IACFS/ME position statements on critical and timely issues including the PACE trial, DSM-5 Somatic Symptom Disorder, the delayed publication of an important MLV retrovirus study, and the (US) CDC leadership of their CFS program. Our strong advocacy statements have also been regularly voiced in public testimony at the CFS Advisory Committee meetings in Washington, DC since 2009. We are now developing a new CFS/ME clinical practice manual for physicians (to be discussed at the Ottawa meeting).
I am asking for your support of the upcoming Ottawa conference in order to continue the important work of the IACFS/ME. A donation in any amount will help to sustain our mission of scientific advocacy and improved patient care. To donate, click here: http://iacfsme.org/Home/SupportTheConference/tabid/471/Default.aspx
With your support, we will continue to offer our biennial research and clinical conferences – an important venue to engage medical professionals in the field CFS/ME and FM. To make a donation click here:
http://iacfsme.org/Home/SupportTheConference/tabid/471/Default.aspx
Thank you.
With best regards,
Fred
Fred Friedberg, PhD
President
IACFS/ME
Lydia
Lydia E. Neilson, M.S.M. , Founder
Chief Executive Officer
NATIONAL ME/FM ACTION NETWORK
512 - 33 Banner Road
Nepean, ON K2H 8V7 Canada
Tel. 613.829.6667
Fax 613.829.8518
Email: mefmaction(a)ncf.ca
www.mefmaction.com
NATIONAL ME/FM ACTION NETWORK - HOST OF THE IACFS/ME INTERNATIONAL RESEARCH & CLINICAL CONFERENCE - OTTAWA, CANADA
SEPTEMBER 22 - 25, 2011
For details on agendas and registration, please visit:
Member of www.iacfsme.org
12 years, 7 months