ANNOUNCEMENT: INTRODUCING 'THE JOURNEY' TO 'QUEST'
by Lydia Neilson
Dear Friends:
I am pleased to advise that, commencing in this issue, there will be an added section to QUEST entitled The Journey, in recognition of those facing the daily struggles of ME/CFS and FM and its many challenges. We believe this section will be of interest to those interested in treatment options and support matters.
James (Jim) Deagle has joined our team as Editor-in-Chief of The Journey. Jim has worked in several news media and communications positions. Starting out as a reporter and editor for various community newspapers, he went on to lend his written communications skills to several Ottawa-area high tech firms, as well as the Standards Council of Canada and the 50th anniversary edition of the Canadian Tulip Festival.
Jim is the contact person for ideas and articles for The Journey and is a welcome volunteer with a fresh perspective.
Send all submissions, including articles, pictures and letters to the Editor to:
mefm.jamesdeagle(a)yahoo.com
Lydia
HIGHLIGHTS OF 'QUEST' WINTER 2010 NO. 86
· Introducing The Journey
· Ottawa 2011 IACFS/ME Conference – Call For Papers
· Registration for Conference
· XMRV – Where Do We Stand?
· Addition to Medical Advisors
· Fibromyalgia: Is It Real?
· New Device May Separate Human DNA from Virus DNA
· Bond Symposium – Australia
· Soya Kefir – Implications for ME/CFS and FM – Update
· News Snippets
· Conference 2011 Update
· Newsletters/Conferences/Books/Reports
· Resources
Issue No. 1
Winter 2010
The Journey
· Should You Get the Flu Shot?
· Bringing ME Awareness to City Hall
· On funding discrepancies and tongue-tied editors
· U.S. study: tai chi may ease fibromyalgia symptoms
· PEI Health and Wellness Minister sales FM/CFS Awareness Day
· ME/CFS and FMS Awareness Day, people, events and activities of May 12, 2010
· Health research funding not equitably distributed
· ‘Lightning Process’ boasts 3-day cure for ME/CFS
· ME Society of Edmonton presents 2010 Florence Nightingale Award
PUBLICATION DATE; WEEK OF FEBRUARY 7, 2011
PLEASE NOTE: QUEST IS THE NATIONAL ME/FM ACTION NETWORK NEWSLETTER, PUBLISHED QUARTERLY AND INCLUDED WITH ANNUAL MEMBERSHIP FEE.
Lydia
Lydia E. Neilson, M.S.M. , Founder
Chief Executive Officer
NATIONAL ME/FM ACTION NETWORK
512 - 33 Banner Road
Nepean, ON K2H 8V7 Canada
Tel. 613.829.6667
Fax 613.829.8518
Email: mefmaction(a)ncf.ca
www.mefmaction.net
NATIONAL ME/FM ACTION NETWORK - HOST OF THE IACFS/ME INTERNATIONAL RESEARCH & CLINICAL CONFERENCE - OTTAWA, CANADA
SEPTEMBER 22 - 25, 2011
Visit: www.iacfsme.org
13 years, 3 months
ANNOUNCEMENT: DR. DANIEL PETERSON CONFERENCE
by Lydia Neilson
CONFERENCE
Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS)
Diagnosis and Management: The Basics and Beyond
The Blackfoot Inn, 5940 Blackfoot Trail SE Calgary, Alberta
Daniel L. Peterson MD
Internal Medicine Specialist, 27 Years Clinical Experience with ME/CFS
CLINICAL CASE CONFERENCE: With Dr. Peterson and Dr. Ellie Stein
Bring a challenging file to get advice from the experts
Registration limited to ensure maximal participation
DATE: Friday April 1, 2011 1:00 pm - 4:30 pm (room to be announced)
FEE: $75
NETWORKING DINNER:
DATE: Friday April 1, 2011 7:00 - 9 pm (room to be announced)
DINNER SPEAKER: Dr. Peterson and a member of the U of Alberta/U of Calgary XMRV research team
TOPIC: XMRV in ME/CFS: Is this newly discovered retrovirus an innocent bystander or central player?
FEE: $45
CONTINUING MEDICAL EDUCATION PROGRAM:
DATE: Saturday April 2nd, 2011
REGISTRATION: 8:30 – 9:00 am
WORKSHOP: 9:00 am – 5:00 pm
CME: This program has been reviewed by The College of Family Physicians of Canada and is awaiting final accreditation by the College’s Alberta Chapter. This program has been approved for RCPSC Section 1 - 3.5 hours and Section 3 - 2.5 hours.
LEARNING OBJECTIVES: This program includes small group interviewing practice with pre and post self assessment.
1. To list and elicit the diagnostic criteria for ME/CFS
2. To evaluate and support patient self management
3. To identify common reasons for failure of patients with ME/CFS to progress
4. To perform a diagnostic work up on a patient with ME/CFS
5. To implement a treatment strategy for patients with ME/CFS
FEE: $140 ($170 After March 15, 2011)
$100 for registered students (please provide proof of student status)
Includes: Overview of the Canadian Consensus Guidelines for the Diagnosis and Treatment of ME/CFS, program syllabus, refreshments at breaks and lunch
in support of the IACFS/ME research and clinical conference in Ottawa, Canada “Translating Evidence into Practice” September 22 - 25, 2011, proceeds from these events will be donated to its host, the National ME/FM Action Network, a registered Canadian charity for ME/CFS and FM.
Lydia
Lydia E. Neilson, M.S.M. , Founder
Chief Executive Officer
NATIONAL ME/FM ACTION NETWORK
512 - 33 Banner Road
Nepean, ON K2H 8V7 Canada
Tel. 613.829.6667
Fax 613.829.8518
Email: mefmaction(a)ncf.ca
www.mefmaction.net
NATIONAL ME/FM ACTION NETWORK - HOST OF THE IACFS/ME INTERNATIONAL RESEARCH & CLINICAL CONFERENCE - OTTAWA, CANADA
SEPTEMBER 22 - 25, 2011
Visit: www.iacfsme.org
13 years, 3 months
OTTAWA 2011 IACFS/ME CONFERENCE: CALL FOR PAPERS
by Lydia Neilson
OTTAWA 2011 CONFERENCE – CALL FOR PAPERS
The IACFS/ME is calling for papers for the the 10th International IACFS/ME research and clinical conference “Translating Evidence into Practice, hosted by the National ME/FM Action Network, is now calling for papers and invites potential presenters to submit abstracts and/or workshop proposals for their next biennial meeting which will be held in Ottawa, Ontario, Canada, September 22-25, 2011.
Integrative conference themes will focus on fatigue, pain, sleep, pediatrics, cognition, and brain function in CFS/ME, Fibromyalgia, and Related Illnesses (e.g., cancer fatigue). In addition, different sessions will address advances in assessment and treatment (from biological to behavioral), as well as new developments in virology, immunology, and neuroendocrinology.
Papers will be reviewed by the Conference Planning Committee for selection as an oral lecture, short oral presentation, or poster presentation. Professional workshop proposals will also be accepted. Attendees to IACFS/ME conferences are primarily biomedical and behavioral professionals, including clinicians, researchers, and educators. Papers should reflect this level of experience and expertise. It is anticipated that this event will be accredited for continuing medical education for Category 1 CME (physicians), CNE for nurses, and CPE for pharmacists. Please E-mail abstracts or workshop proposals, CV, and the two required presenter forms to Brandon(a)iacfsme.org no later than March 1, 2011 for workshops, March 15, 2011 for abstracts, and July 15, 2011 for Late Breaking Communications (posters only).
The presenting author will be contacted in April, 2011 and advised if submitted abstract(s) or workshop proposals is / are accepted with the type of presentation selected. Authors will be advised of the date and time of their presentation. If selected as a poster presenter, presenting author will be provided with specifications for presentation and display.
Questions regarding papers or the submission process should be directed to IACFS/ME Administrative Office, Attention: Brandon Pacyna; E-mail: Brandon(a)iacfsme.org
Phone 847-258-7248.
[Ed. Note: For detailed information, please view the IACFS/ME website at www.iacfs.org]
Lydia
Lydia E. Neilson, M.S.M. , Founder
Chief Executive Officer
NATIONAL ME/FM ACTION NETWORK
512 - 33 Banner Road
Nepean, ON K2H 8V7 Canada
Tel. 613.829.6667
Fax 613.829.8518
Email: mefmaction(a)ncf.ca
www.mefmaction.net
NATIONAL ME/FM ACTION NETWORK - HOST OF THE IACFS/ME INTERNATIONAL RESEARCH & CLINICAL CONFERENCE
13 years, 4 months
IACFS/ME RESEARCH & CLINICAL CONFERENCE - 2011
by Lydia Neilson
Dear Friends:
I would like to appeal to you for your help. As you know, the National ME/FM Action Network will be hosting the IACFS/ME research and clinical conference from September 22nd to 25th, 2011 in Ottawa. This is a four-day medical conference with workshops and meetings performed by expert researchers and professionals. There will also be a one-day patient conference on September 22nd.
Please consider making a donation towards this most important event. This is the first time a conference of this magnitude for ME/CFS has been held in Canada and the first time Fibromyalgia has been given prominence in this conference which also includes related illnesses. With all the exciting research going on, the timing of this conference is excellent.
May I suggest you ask your family and friends to help and give just $5.00 and those who run a support group to do the same and together we can make this a conference to remember.
Please see the conference donation form below for details on how you can make your donation.
See you in Ottawa in 2011.
Sincerely,
NATIONAL ME/FM ACTION NETWORK
Lydia
Lydia E. Neilson, M.S.M.
Founder, Chief Executive Officer.
CREDIT CARD TRANSACTIONS CAN BE FAXED T0:
#(613) 829-8518
Lydia E. Neilson, M.S.M. , Founder
Chief Executive Officer
NATIONAL ME/FM ACTION NETWORK
512 - 33 Banner Road
Nepean, ON K2H 8V7 Canada
Tel. 613.829.6667
Fax 613.829.8518
Email: mefmaction(a)ncf.ca
www.mefmaction.net
NATIONAL ME/FM ACTION NETWORK - HOST OF THE IACFS/ME INTERNATIONAL RESEARCH & CLINICAL CONFERENCE
13 years, 4 months
