9 a.m.
Dear Friends:
First of all, I will be occupied with the conference from September 20th to 26th, 2011 so
please keep your emails to a minimum as I don't know how much I will be able to check
them. Thanks.
There will be quite a few giveaways so one of our Network's legal advisor, Mr. Hugh
Scher of Scher Law Professional Corporation - Toronto, has been kind enough to provide us
with a complimentary DVD entitled Solving LTD and CPP Disputes. Mr. Scher is well known
in the legal community for his expertise on disability law and also see ME/CFS and FM
clients on a regular basis due to his expertise in that area also as well as other
disabilities and conditions. He will be a speaker at the Patient Conference;
Lawyer, Mr. Ted Masters, of the firm of Burke Robertson et al in Ottawa, who is also well
known in the ME/CFS and FM community will be at our table at the conference and can be
seen for legal advice. His firm is providing complimentary tote bags and has provided us
at their expense with our new banner which will be displayed at the conference;
Dr. Alison Bested has designed a tool kit for patients which will be available at a
nominal cost at the conference and the profits will go to the National ME/FM Action
Network. Dr. Bested is well known in Canada for his medical expertise in the field of
ME/CFS and FM and was one of the panel members of the Canadian ME Definition, Consensus
Document, in 2003. Dr. Bested does not only diagnose and treat people with ME/CFS and FM
but was involved at government levels which led to a billing code for ME/CFS in Ontario
for doctors seeing ME/CFS patients. She advocates tirelessly for those who least are able
to fend for themselves and is a regular speaker at events to spread awareness and hope.
We are deeply grateful to have such a gem in our midst.
Dr. Byron Hyde of the Nightingale Research Foundation will be kindly providing us with
copies of The Clinical and Scientific Basis of Myalgic Encephalomyelitis Chronic Fatigue
Syndrome which was published in 1992 but its medical and scientific information contained
therein is still accurate and applicable today. He is providing this book free of charge
but suggests a donation be made to the National ME/FM Action Network. We are grateful to
Dr. Hyde not only for providing us with this valuable book for distribution but also for
his difficult journey over the years in bringing awareness and knowledge to the population
on ME/CFS and acknowledgement of the illness led to ridicule.
Ottawa Tourism has also provided our Network with a guide to Ottawa which will also be
available at our table.
There will be lots of other goodies so the tote bag will come in handy.
Ottawa Tourism has also provided our Network with a guide to Ottawa which will also be
available at our table.
There will be lots of other goodies so the tote bag will come in handy.
For those who are travelling, I wish you a safe journey and will see you in Ottawa. Those
who are not well enough to do so, please stay turned to our website at www.mefmaction.com
for updates or Facebook.
I hope everyone's stamina holds out. The National ME/FM Action Network team looks
forward to meeting you.
Lydia
Lydia E. Neilson, M.S.M. , Founder
Chief Executive Officer
NATIONAL ME/FM ACTION NETWORK
512 - 33 Banner Road
Nepean, ON K2H 8V7 Canada
Tel. 613.829.6667
Fax 613.829.8518
Email: mefmaction(a)ncf.ca
www.mefmaction.com
NATIONAL ME/FM ACTION NETWORK - HOST OF THE IACFS/ME INTERNATIONAL RESEARCH & CLINICAL
CONFERENCE - OTTAWA, CANADA
SEPTEMBER 22 - 25, 2011
For details on agendas and registration, please visit:
Member of www.iacfsme.org