ANNOUNCEMENT: SPINAL FLUID PROTEINS DISTINGUISH LYME FROM ME/CFS
by Lydia Neilson
SPINAL FLUID PROTEINS DISTINGUISH LYME DISEASE FROM ME/CFS
U.S.A. Dr. Steven E. Schutzer and his team of the University of Medicine and Dentistry of New Jersey have discovered unique proteins in the spinal fluid of ME/CFS and Lyme Disease people which suggest both conditions involve the central nervous system and that protein abnormalities in the CNS are causes and/or effects of both conditions. It was also able to distinguish those of healthy controls.
Dr. Schutzer stated that “Spinal fluid is like a liquid window to the brain” and he hoped that that the abnormalities could be used as markers for each condition and lead to improvements in diagnosis and treatment.
Short version:
http://www.pslgroup.com/news/content.nsf/medicalnews/852576140048867C8525...
Research write up:
http://www.plosone.org/article/info:doi/10.1371/journal.pone.0017287
Lydia
Lydia E. Neilson, M.S.M. , Founder
Chief Executive Officer
NATIONAL ME/FM ACTION NETWORK
512 - 33 Banner Road
Nepean, ON K2H 8V7 Canada
Tel. 613.829.6667
Fax 613.829.8518
Email: mefmaction(a)ncf.ca
www.mefmaction.net
NATIONAL ME/FM ACTION NETWORK - HOST OF THE IACFS/ME INTERNATIONAL RESEARCH & CLINICAL CONFERENCE - OTTAWA, CANADA
SEPTEMBER 22 - 25, 2011
Visit: www.iacfsme.org
13 years, 1 month
MESSAGE FROM LYDIA
by Lydia Neilson
Friday, February 25, 2011
MESSAGE FROM LYDIA
STAY FOCUSED
My Dearest Friends:
The natural response to unfairness is to lash out in outrage. Right now is such a time that after some highs some lows have come our way. For those of us who have been around a long time, we are very familiar with those downs as in the past there were many. This is one of those times and it means it takes more effort to stay on track.
There have been many reports over the past 20 years or so of possible causes of ME/CFS and FM, many treatments suggested, and we have been hailed as the laziest people around. You know the old saying, sticks and stones may hurt the bones but words will never hurt me. The negative reports may not be words in the normal sense but they are still the opinions of people which means other opinions and tests can be done.
Now, more than any other time, is the need to stay focused and not react. Remember what we want, a standardized international definition for ME/CFS that not only clinicians but researchers would use so that the test results will be based on the right definition and be more meaningful. As long as a researcher can select which definition to use, he or she will use one which suits his or her purpose or outcome. The PACE Trial is a good example.
Another focus which is just as important is that proper research gets done and that we are all on the same page. Researchers need to know what everyone is working on so that there can be better collaboration and quicker results and no repetition.
Our best defense is offence. Get the scientific facts and let them speak for themselves. No amount of outcry will do as much as research results.
Remember we have come a long way from having no information but what that also means is that some of it will be negative. We can choose to concentrate on the negative or stay focused and remember what we are trying to accomplish.
Lydia
Lydia
Lydia E. Neilson, M.S.M. , Founder
Chief Executive Officer
NATIONAL ME/FM ACTION NETWORK
512 - 33 Banner Road
Nepean, ON K2H 8V7 Canada
Tel. 613.829.6667
Fax 613.829.8518
Email: mefmaction(a)ncf.ca
www.mefmaction.net
NATIONAL ME/FM ACTION NETWORK - HOST OF THE IACFS/ME INTERNATIONAL RESEARCH & CLINICAL CONFERENCE - OTTAWA, CANADA
SEPTEMBER 22 - 25, 2011
Visit: www.iacfsme.org
13 years, 2 months
ANNOUNCEMENT: INTRODUCING THE JOURNEY
by Lydia Neilson
WEDNESDAY, FEBRUARY 23, 2011
ANNOUNCEMENT
Our quarterly newsletter QUEST has just been published and mailed to all those who subscribe. However, we now have added a new section to QUEST entitled THE JOURNEY which deals with treatment, concerns and support issues. In view of this, we are making this issue available to anyone who would like a copy.
Please contact me and I will email you a copy as an attachment or provide me with your mailing address and I will send you a copy via the postal service free of charge.
Lydia
Lydia E. Neilson, M.S.M. , Founder
Chief Executive Officer
NATIONAL ME/FM ACTION NETWORK
512 - 33 Banner Road
Nepean, ON K2H 8V7 Canada
Tel. 613.829.6667
Fax 613.829.8518
Email: mefmaction(a)ncf.ca
www.mefmaction.net
NATIONAL ME/FM ACTION NETWORK - HOST OF THE IACFS/ME INTERNATIONAL RESEARCH & CLINICAL CONFERENCE - OTTAWA, CANADA
SEPTEMBER 22 - 25, 2011
Visit: www.iacfsme.org
13 years, 2 months
ANNOUNCEMENT: OPEN ACCESS RESEARCH SITE
by Lydia Neilson
IN THE NEWS
OTTAWA Medical researchers from Ottawa and Britain want all their colleagues to tell the world what studies they’re working on. They indicated that the left lab doesn’t know what the right lab is doing. That applies to new drugs, how to vaccinate in a flu pandemic, research etc. “And so there is no place in the world where you can go and see who’s doing what in the world and what’s going on.” States Dr. David Moher of the Ottawa Hospital Research Institute. There is much duplication in systemic reviews and money wasted on duplications which could be spent on useful work somewhere else. Dr. Moher and colleagues in Britain have set up a website where scientists can announce their studies in the earliest stages at no cost to prevent such waste. An open access website is to start operating today (February 22, 2011) at the University of York in England at http://www.crd.york.ac.uk/prospero.
Reporter, Tom Spears, Ottawa Citizen, February 22, 2011
Reed more at Read more: http://www.ottawacitizen.com/technology/Share+knowledge+health+researcher...
Lydia
Lydia E. Neilson, M.S.M. , Founder
Chief Executive Officer
NATIONAL ME/FM ACTION NETWORK
512 - 33 Banner Road
Nepean, ON K2H 8V7 Canada
Tel. 613.829.6667
Fax 613.829.8518
Email: mefmaction(a)ncf.ca
www.mefmaction.net
NATIONAL ME/FM ACTION NETWORK - HOST OF THE IACFS/ME INTERNATIONAL RESEARCH & CLINICAL CONFERENCE - OTTAWA, CANADA
SEPTEMBER 22 - 25, 2011
Visit: www.iacfsme.org
13 years, 2 months
ANNOUNCEMENT: NAMES WANTED
by Lydia Neilson
WANTED:
NAMES & ADDRESSES OF DOCTORS, NURSES, HEALTH CARE & LEGAL PROFESSIONALS
Dear Friends:
We will shortly be sending out invitation to medical and healthcare professionals to the IACFS/ME clinical and research conference for ME/CFS, FM and related illnesses Translating Evidence into Parace that the National ME/FM Action Network is hosting in Ottawa in September 2011.
This is the opportunity to let us know who you would like us to invite to this event. Please submit the names and addresses of those individuals and we will add them to our list. You can send us the list by email, fax, or through regular mail.
Please do this as soon as you can.
Thanks so much.
Lydia
Lydia E. Neilson, M.S.M. , Founder
Chief Executive Officer
NATIONAL ME/FM ACTION NETWORK
512 - 33 Banner Road
Nepean, ON K2H 8V7 Canada
Tel. 613.829.6667
Fax 613.829.8518
Email: mefmaction(a)ncf.ca
www.mefmaction.net
NATIONAL ME/FM ACTION NETWORK - HOST OF THE IACFS/ME INTERNATIONAL RESEARCH & CLINICAL CONFERENCE - OTTAWA, CANADA
SEPTEMBER 22 - 25, 2011
Visit: www.iacfsme.org
13 years, 2 months
OTTAWA CONFERENCE 2011 - CALL FOR PAPERS REMINDER
by Lydia Neilson
Call for Papers
10th International IACFS/ME
Research and Clinical Conference:
Translating Evidence into Practice
September 22-25, 2011
Delta Ottawa City Centre Hotel
Ottawa, Ontario, Canada
Hosted by the National ME/FM Action Network (Canada)
The Conference Planning Committee of the International Association for Chronic Fatigue Syndrome/ME (IACFS/ME) invites potential presenters to submit abstracts and/or workshop proposals for our next biennial meeting which will be held in Ottawa, Ontario, Canada, September 22-25, 2011.
Integrative conference themes will focus on fatigue, pain, sleep, pediatrics, cognition, and brain function in CFS/ME, Fibromyalgia, and Related Illnesses (e.g., cancer fatigue). In addition, different sessions will address advances in assessment and treatment (from biological to behavioral), as well as new developments in virology, immunology, and neuroendocrinology.
Papers will be reviewed by the Conference Planning Committee for selection as an oral lecture, short oral presentation, or poster presentation. Professional workshop proposals will also be accepted. Attendees to IACFS/ME conferences are primarily biomedical and behavioral professionals, including clinicians, researchers, and educators. Papers should reflect this level of experience and expertise. It is anticipated that this event will be accredited for continuing medical education for Category 1 CME (physicians), CNE for nurses, and CPE for pharmacists.
For submission instructions, please visit http://www.iacfsme.org
IACFS/ME
27 N. Wacker Drive, #416
Chicage, Illinois 60606
Lydia
Lydia E. Neilson, M.S.M. , Founder
Chief Executive Officer
NATIONAL ME/FM ACTION NETWORK
512 - 33 Banner Road
Nepean, ON K2H 8V7 Canada
Tel. 613.829.6667
Fax 613.829.8518
Email: mefmaction(a)ncf.ca
www.mefmaction.net
NATIONAL ME/FM ACTION NETWORK - HOST OF THE IACFS/ME INTERNATIONAL RESEARCH & CLINICAL CONFERENCE - OTTAWA, CANADA
SEPTEMBER 22 - 25, 2011
Visit: www.iacfsme.org
13 years, 2 months