ANNOUNCEMENT: BC MINISTRY OF HEALTH NEWS RELEASE
by Lydia Neilson
NEWS RELEASE
Ministry of Health Provincial Health Services Authority
March 30, 2011
Help for patients with Lyme Disease, ME/CFS and Fibromyalgia
CANADA – VICTORIA, BC –
Ryan Jabs, Media Relations Manager of the Ministry of Health for British Columbia announced
A $2-million provincial clinical and research study which will help patients with chronic Lyme disease, fibromyalgia, and chronic fatigue syndrome, with screening, diagnosis and treatment.
Mr. Jabs stated that “ over the last few years, there have been many advances in genome science, including DNA sequencing and computer analysis. These advances have led to new techniques that may help to diagnose previously difficult illnesses, such as these. As a result, in September 2010 the Ministry of Health Services asked the Provincial Health Services Authority (PHSA) to present options for a clinic for patients with complex symptoms, possibly related to an underlying infectious disease.”
Mr. Jabs further stated that with this clinic and study, British Columbia “is taking a leading role within Canada” working with patients and family physicians from across the province. Referrals will be accepted from family physicians and other health care providers from patients exhibiting symptoms for these illnesses in an aim is to provide accurate diagnosis and treatment and manage their symptoms.
In addition, the clinic will have telehealth capabilities and provide consultations and information to physicians and health care providers. Researchers will collaborate with the clinic in order to examine these illnesses in dept and plan a protocol. It is anticipated to have the clinic and studies up and running by Fall 2011.
To view more details, visit http://www.gov.bc.ca/connect
.
Lydia
Lydia E. Neilson, M.S.M. , Founder
Chief Executive Officer
NATIONAL ME/FM ACTION NETWORK
512 - 33 Banner Road
Nepean, ON K2H 8V7 Canada
Tel. 613.829.6667
Fax 613.829.8518
Email: mefmaction(a)ncf.ca
www.mefmaction.net
NATIONAL ME/FM ACTION NETWORK - HOST OF THE IACFS/ME INTERNATIONAL RESEARCH & CLINICAL CONFERENCE - OTTAWA, CANADA
SEPTEMBER 22 - 25, 2011
Visit: www.iacfsme.org
15 years, 4 months
ANNOUNCEMENT: URINE TEST CORRECTION
by Lydia Neilson
Dear Friends:
I had received the information about the urine test yesterday as breaking news and took it as such. I recalled hearing about a urine test for CFS awhile back but couldn't remember from whom or where.
One of my contacts went on the internet and found out the article dates back to 2009 when it first was announced. I then went to the Protea Biopharma website and viewed its FAQs in which it states that it is not an approved test but still considered research. However, as patients have been requesting the kit, it is available at a price. Below is what was posted as an explanation.
I am really sorry that I didn't follow my instincts and checked out what I remembered from back then before sending you the information as new.
Lydia
Lydia E. Neilson, M.S.M. , Founder
Chief Executive Officer
NATIONAL ME/FM ACTION NETWORK
512 - 33 Banner Road
Nepean, ON K2H 8V7 Canada
Tel. 613.829.6667
Fax 613.829.8518
Email: mefmaction(a)ncf.ca
www.mefmaction.net
> FYI: I found this on the internet regarding the same article.
>
> http://www.ei-resource.org/news/chronic-fatigue-syndrome-news/diagnostic-...
>
> Added at the bottom note:
>
> CORRECTION: It has been brought to my attention that this story is in fact based on a Press Release circulated in 2009. Sincerest apologies for raising false hopes. The article has been left online for reference purposes but should be seen as historic rather than a new (March 2011) information.
NATIONAL ME/FM ACTION NETWORK - HOST OF THE IACFS/ME INTERNATIONAL RESEARCH & CLINICAL CONFERENCE - OTTAWA, CANADA
SEPTEMBER 22 - 25, 2011
Visit: www.iacfsme.org
15 years, 5 months
NATIONAL ME/FM ACTION NETWORK NEW WEBSITE LAUNCHED
by Lydia Neilson
Hello Everyone:
As of this morning, our new website is now launched and can be viewed at www.mefmaction.com
Hope you like it.
Lydia
Lydia E. Neilson, M.S.M. , Founder
Chief Executive Officer
NATIONAL ME/FM ACTION NETWORK
512 - 33 Banner Road
Nepean, ON K2H 8V7 Canada
Tel. 613.829.6667
Fax 613.829.8518
Email: mefmaction(a)ncf.ca
www.mefmaction.net
NATIONAL ME/FM ACTION NETWORK - HOST OF THE IACFS/ME INTERNATIONAL RESEARCH & CLINICAL CONFERENCE - OTTAWA, CANADA
SEPTEMBER 22 - 25, 2011
Visit: www.iacfsme.org
15 years, 5 months
ANNOUNCEMENT: CALL FOR PAPERS UPDATE
by Lydia Neilson
CALL FOR PAPERS
• The Conference Planning Committee of the International Association for Chronic Fatigue Syndrome/ME (IACFS/ME) invites potential presenters to submit abstracts and/or workshop proposals for our next biennial meeting Translating Evidence into Practice.
· NEW DEADLINE FOR CALL FOR PAPERS APRIL 2, 2011
· WORKSHOPS MARCH 15, 2011
· For submission details, Please visit http://www.mecfsme.org
• To be held in Ottawa, Ontario, Canada, September 22-25, 2011. Hosted by the National ME/FM Action Network (Canada)
•
Integrative conference themes will focus on fatigue, pain, sleep, pediatrics, cognition, and brain function in CFS/ME, Fibromyalgia, and Related Illnesses (e.g., cancer fatigue). I
· In addition, different sessions will address advances in assessment and treatment (from biological to behavioral), as well as new developments in virology, immunology, and neuroendocrinology.
· Papers will be reviewed by the Conference Planning Committee for selection as an oral lecture, short oral presentation, or poster presentation. Professional workshop proposals will also be accepted. Attendees to IACFS/ME conferences are primarily biomedical and behavioral professionals, including clinicians, researchers, and educators. Papers should reflect this level of experience and expertise.
· It is anticipated that this event will be accredited for continuing medical education for Category 1 CME (physicians), CNE for nurses, and CPE for pharmacists.
2011 CONFERENCE LOCATION:
• Delta Ottawa City Centre Hotel
Ottawa, Ontario, Canada
ABOUT OTTAWA
IACFS/ME 2011 conference location Delta Ottawa City Centre overlooks the cityscapes and natural wonders of Ottawa, touted as the city by which all capitals should be measured.
The conference will be held during the height of fall foliage season with leaves that change to brilliant oranges, reds and yellows.
Situated in Ottawa's political and business hub.
Delta Ottawa is conveniently located downtown and has easy access to entertainment districts, Parliament Buildings, museums and many other popular attractions. Nestled on the banks of the majestic Ottawa, Rideau and Gatineau Rivers, Ottawa is one of the most beautiful capitals in the world.
A thriving international technology and business centre and world class tourism and convention destination, Ottawa is also rich in culture and heritage with its many national institutions, parklands, waterways and historic architecture.
Whether your interest is culture, history or simply natural outdoor attractions, Canada’s Capital region offers a unique combination of both. 30 museums. 50 galleries and theatres. Night clubs. Fine dining. World-class shopping. Heritage sites. Stunning architecture. Festivals. Cultural activities. Attractions. Tours. Natural wonders. Sports. Friendly people.
Lydia
Lydia E. Neilson, M.S.M. , Founder
Chief Executive Officer
NATIONAL ME/FM ACTION NETWORK
512 - 33 Banner Road
Nepean, ON K2H 8V7 Canada
Tel. 613.829.6667
Fax 613.829.8518
Email: mefmaction(a)ncf.ca
www.mefmaction.net
NATIONAL ME/FM ACTION NETWORK - HOST OF THE IACFS/ME INTERNATIONAL RESEARCH & CLINICAL CONFERENCE - OTTAWA, CANADA
SEPTEMBER 22 - 25, 2011
Visit: www.iacfsme.org
15 years, 5 months
Fwd: Call for Papers - IACFS/ME 2011 Conference
by Lydia Neilson
NEW DEADLINE CALL FOR PAPERS: APRIL 2, 2011
FOR WORKSHOPS: MARCH 15, 2011
Begin forwarded message:
> From: ffriedberg(a)notes.cc.sunysb.edu
> Date: March 9, 2011 7:34:01 AM EST
> To: mefmaction(a)ncf.ca
> Subject: Fw: Call for Papers - IACFS/ME 2011 Conference
>
>
>
>
>
> CALL FOR PAPERS
> The Conference Planning Committee of the International Association for Chronic Fatigue Syndrome/ME (IACFS/ME) invites potential presenters to submit abstracts and/or workshop proposals for our next biennial meeting Translating Evidence into Practice.
>
> To be held in Ottawa, Ontario, Canada, September 22-25, 2011. Hosted by the National ME/FM Action Network (Canada)
>
> Integrative conference themes will focus on fatigue, pain, sleep, pediatrics, cognition, and brain function in CFS/ME, Fibromyalgia, and Related Illnesses (e.g., cancer fatigue). In addition, different sessions will address advances in assessment and treatment (from biological to behavioral), as well as new developments in virology, immunology, and neuroendocrinology.
>
> Papers will be reviewed by the Conference Planning Committee for selection as an oral lecture, short oral presentation, or poster presentation. Professional workshop proposals will also be accepted. Attendees to IACFS/ME conferences are primarily biomedical and behavioral professionals, including clinicians, researchers, and educators. Papers should reflect this level of experience and expertise. It is anticipated that this event will be accredited for continuing medical education for Category 1 CME (physicians), CNE for nurses, and CPE for pharmacists.
>
> For submission instructions, click here >
>
>
>
>
> 2011 CONFERENCE LOCATION:
> Delta Ottawa City Centre Hotel
> Ottawa, Ontario, Canada
> To receive conference updates, click here >
>
>
>
> ABOUT OTTAWA
>
> IACFS/ME 2011 conference location Delta Ottawa City Centre overlooks the cityscapes and natural wonders of Ottawa, touted as the city by which all capitals should be measured. The conference will be held during the height of fall foliage season with leaves that change to brilliant oranges, reds and yellows.
>
> Situated in Ottawa's political and business hub, Delta Ottawa is conveniently located downtown and has easy access to entertainment districts, Parliament Buildings, museums and many other popular attractions. Nestled on the banks of the majestic Ottawa, Rideau and Gatineau Rivers, Ottawa is one of the most beautiful capitals in the world. A thriving international technology and business centre and world class tourism and convention destination, Ottawa is also rich in culture and heritage with its many national institutions, parklands, waterways and historic architecture.
>
> Whether your interest is culture, history or simply natural outdoor attractions, Canada’s Capital region offers a unique combination of both. 30 museums. 50 galleries and theatres. Night clubs. Fine dining. World-class shopping. Heritage sites. Stunning architecture. Festivals. Cultural activities. Attractions. Tours. Natural wonders. Sports. Friendly people.
>
> To receive conference updates, click here >
>
>
>
>
> If you no longer wish to receive these emails, please reply to this message with "Unsubscribe" in the subject line or simply click on the following link: Unsubscribe
> IACFS/ME
> 27 N. Wacker Drive, #416
> Chicage, Illinois 60606
> US
> Read the VerticalResponse marketing policy.
>
Lydia
Lydia E. Neilson, M.S.M. , Founder
Chief Executive Officer
NATIONAL ME/FM ACTION NETWORK
512 - 33 Banner Road
Nepean, ON K2H 8V7 Canada
Tel. 613.829.6667
Fax 613.829.8518
Email: mefmaction(a)ncf.ca
www.mefmaction.net
NATIONAL ME/FM ACTION NETWORK - HOST OF THE IACFS/ME INTERNATIONAL RESEARCH & CLINICAL CONFERENCE - OTTAWA, CANADA
SEPTEMBER 22 - 25, 2011
Visit: www.iacfsme.org
15 years, 5 months